Family and caregiver associate membership is open to residents of Ireland who have an immediate family member with a diagnosis of Dravet Syndrome or other rare genetic epilepsy. Our membership is also open to full time caregivers for people with rare genetic epilepsies.

By becoming a member of Dravet Syndrome Ireland, you are joining with families like yours who are living with Dravet Syndrome and other forms of rare and complex genetic epilepsies. Dravet Syndrome Ireland is in contact with similar organisations across Europe to learn about the latest in research and medicines and the advances in therapies. We are a member of the Dravet Syndrome European Federation and are involved in their current European wide projects.

Members can share in the latest developments and research. We also organise educational and fun day events for families and caregivers to meet and share experiences.

Only by growing our membership can we benefit each other and support all families living with Dravet Syndrome and other genetic epilepsies.

Please read our Privacy Policy in order to understand how your information is used and stored by Dravet Syndrome Ireland.

Applications for Family and Caregiver Associate Membership are now closed. Please check back in January for our 2026 Membership