Family and Caregiver Associate Membership

Family and caregiver membership is open to residents of the Republic of Ireland who have a family member with a diagnosis of Dravet Syndrome or other genetic epilepsy.

By becoming a member of Dravet Syndrome Ireland, you are joining with families like yours who are living with Dravet and other forms of genetic epilepsy. Dravet Syndrome Ireland is in contact with similar organisations across Europe to learn about the latest in research and medicines and the advances in therapies. We are a member of the Dravet Syndrome European Federation and are involved in their current European wide projects.

Members can share in the latest developments and research. We also organise virtual educational events and days out for families and caregivers to meet and share experiences.

Only by growing our membership can we benefit each other and support all families living with Dravet Syndrome and other genetic epilepsies.

Membership is free and all families and caregivers can receive an optional gift of a seizure diary on registration.

Please read our Privacy Policy in order to understand how your information is used and stored by Dravet Syndrome Ireland.