New for 2024, our Family Support Grant provides families impacted by Dravet Syndrome and other severe genetic epilepsies with financial support for medical or learning needs up to the value of €500 per family. Applications are open to all families who are current members of Dravet Syndrome Ireland.

Parents or legal guardians can apply for the grant using the simple application form for reimbursement of expenses related to their child’s additional needs incurred in 2023 or 2024. Receipts for the specified expenses must be included with the application form along with a letter of recommendation from your consultant neurologist.

Qualifying expenses include but are not limited to epilepsy or video monitors, private therapies by registered health professionals, counselling services, adapted sports equipment such as bicycle or tricycle, activities such as horse riding, 1:1 swim lessons, assistive technology including tablet or iPad devices for communication or educational use, nursing hours or private respite.

Qualifying expenses may exceed the grant maximum of €500. However, if approved, the amount granted will remain at €500 as per maximum amount per family for this scheme.

The total budget for our Family Support Grant for 2024 is €10,000, which has been funded through recent fundraising, donations and a grant from Biocodex to the Charity for this purpose. It is expected that 20 families will be beneficiaries of the Grant based on the budget provided. In the interests in fairness grants will be awarded on a first come first served basis.

For more information and full terms and conditions see our Family Support Grant Policy.