Symposium for Parent and Caregivers

Symposium for Parent and Caregivers

Dravet Syndrome Ireland's 2024 Symposium for Parents and Caregivers

We are delighted to announce Dravet Syndrome Ireland's 2024 Symposium for Parents and Caregivers will take place on Saturday 25th May. Join us at the Lucan Spa Hotel Dublin for a day filled with insightful discussions, valuable resources, and a supportive community. This in-person event is designed to bring together parents and caregivers of individuals with Dravet Syndrome and other complex genetic epilepsies to share experiences, learn from experts, and connect with others facing similar challenges. Don't miss this opportunity to gain knowledge, find support, and build lasting connections. We look forward to seeing you there! Register here


Free family and caregiver membership

Dravet Syndrome Ireland is an organisation established by parents to support the community of families affected by Dravet Syndrome and other severe genetic epilepsies in Ireland. We are here to provide support and share information.

What we do

From entitlements to the health and education systems, there is much to navigate with a child with a diagnosis of severe genetic epilepsy.  We are here to share information and provide support.


 
 

Our misson

Our mission is to support families and improve outcomes for individuals affected by Dravet Syndrome and other complex genetic epilepsies in Ireland.

 
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What is Dravet Syndrome

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Other Genetic Epilepsies


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Resources and Support


 

Gallery


Membership


 
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Managing your Child’s Seizures

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What is SUDEP


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Families and their Journeys